Our Stories
Connecting science and people
Voices coming together to tell a unique story.
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Explore the connections that make a difference.
Science
Rare and ultra-rare diseases: the value of scientific knowledge
Putting patients first: priorities for Congenital Bleeding Disorders in Italy
Stories
AIP, patient advocacy and a shared commitment to better PID care in Italy
Projects
“Home With You”: a collective story about the people who make care possible
Projects
Affianco – A joint narrative of Primary Immunodeficiency
Projects
AFFIANCO 2.0: the power of mutual support
Science
Dr. Vanessa Agostini on anemia and hypophosphatemia: a call for a multidisciplinary approach
Science
Improving patient lives: Dr. Giovanni Inghilleri on the different therapeutic options for iron-deficiency anemia
Science
Integrated management of von Willebrand disease in women: insights from Prof. Sergio Siragusa
Science